Accessing Data

Accessing Data

There are three general types of Users for Brain-CODE:

Data Access Committee (DAC)

The Data Access Committee reviews requests for data. Learn more about data access and sharing are managed here.

Brain-CODE Operates Under Informed Consent

The expressed written consent of study participants, from whom data have been collected, is required to transfer data, which may include PHI, into Brain-CODE. 

The Brain-CODE standard consent language must be used in studies that are conducted in collaboration with OBI and for which data will be uploaded to Brain-CODE. 

Learn more about Brain-CODE consent language and other standards.

Please contact governance@braincode.ca for additional standard consent templates and procedures for other participant ages.